Children/Young People’s Health

Cancer (Children)

Some links on this page have been colour coded to make it easier to find the information you need:

Quick Read
In-depth
Clinical level

LOCAL SUPPORT - SELF REFERRAL

CANCER INFORMATION AND SUPPORT SERVICE FOR BUCKINGHAMSHIRE PATIENTS

From Buckinghamshire Health Care Trust (includes Stoke Mandeville and Wycombe hospital)
“Anyone affected by cancer can use the Cancer Information and Wellbeing Service. We’re based at Stoke Mandeville Hospital and make sure that people affected by cancer have access to good quality, comprehensive and appropriate information and support. Our team is staffed by Macmillan Cancer information healthcare professionals and supported by trained volunteers.”
How we support you How we support you – Buckinghamshire Healthcare NHS Trust

Local hospitals: Support from Macmillan Cancer Support

Support for patients attending Frimley Trust (including Wexham Park hospital)
Macmillan Cancer Information and Support Centre Wexham Park Hospital, Frimley Health Trust Macmillan Cancer Information and Support Centre Wexham Park Hospital, Frimley Health Trust – Macmillan Cancer – Macmillan Cancer Support

Support for patients attending Hillingdon Hospital
Macmillan Cancer Information and Support Centre at Hillingdon Macmillan Support and Information Centre | The Hillingdon Hospitals NHS Foundation Trust

Searchable data bases

Support groups in your area
Find out about support groups, where to get information and how to get involved with Macmillan where you live.
Local Dashboard Choose Location – Macmillan Cancer – Macmillan Cancer Support

From the Cancer Care Map
Provide a searchable data base of cancer support services. Many of the services are national, but some local support is included. Homepage | Cancer Care Map

  • You can search for information just on children services by using the keyword “children”

NATIONAL SUPPORT - SELF REFERRAL

NATIONAL HELPLINES

There are a number of commonly used national helplines, which include general support for any issue arising from cancer. Further helplines can be found by reviewing some databases.

NATIONAL HELPLINES

Macmillan Cancer Support

From Cancer research UK

  • Ask our nurses a question (If you or someone close to you have been affected by cancer and you’ve got questions, it is easy to call our nurses) Ask our nurses a question | Cancer Research UK
  • Cancer chat forum (Chat to other people affected by cancer in our online forum. Our friendly team of moderators and nurses are also on hand to support you.) Cancer Chat

From Young Lives vs Cancer
“Get help from our Social Care team today. Speak to us using Live Chat on the website (Monday – Friday 10am – 4pm), chat over the phone or drop us an email and we’ll get back to you.” Talk to us today – Young Lives vs Cancer

Databases

From Cancer Research UK
The support and organisations section for children’s cancers provides an excellent data base of numerous support organisations: “supporting brothers or sisters, children and their families and then children’s cancer organisations”. A number of these organisations offer helplines and even in some cases support workers.
Support and organisations Support and organisation | Children’s Cancer | Cancer Research UK

From the Cancer Care Map
Provide a searchable data base of cancer support services. Add the word “children” as a key word to find some national services relating to children, some with helplines. Homepage | Cancer Care Map

FREQUENTY ASKED QUESTIONS

urgent referral

Cancer in children is not common and very few children referred to exclude cancer are ultimately diagnosed with cancer. The referral process and what to expect at the hospital is explained under

OVERVIEW ON SPECIFIC CANCERS

From the NHS and Patient info
Childhood leukaemias

Retinoblastoma (eye cancer in children)

Neuroblastoma

From Cancer research UK
“Now more than 80 out of every 100 children (80%) diagnosed with cancer will live for at least 5 years or more. Most of these children will be cured.”

From Patient info

From NICE
Childhood cancers – recognition and referral Childhood cancers – recognition and referral | Health topics A to Z | CKS | NICE

GENERAL INFORMATION

Some of this general cancer information will mainly apply to adults but is still worth including for some general points

From Cancer research UK
The support and organisations section for children’s cancers provides an excellent data base of numerous support organisations: “supporting brothers or sisters, children and their families and then children’s cancer organisations”.  There is significant extra information as well as offering helplines.
Children’s Cancers Children’s Cancers | Cancer Research UK

From Macmillan Cancer Support

From Patient info
Children’s Cancers Children’s Cancers | Health | Patient

spotting cancer

Information on what symptoms and signs should make you consider cancer can be found under

Children’s cancers are much less common than adult cancer but it is still worth knowing what symptoms and signs may make you consider cancer.

From Cancer UK
“Children’s cancer is much less common than adult cancer. “
“In the UK around 1,900 children (aged 0 – 14 years) get diagnosed with cancer each year. This number includes non-cancerous (benign) brain tumours. Children develop different types of cancers than adults but they often have the same types of treatments.”  What is children’s cancer? | Cancer Research UK

This compares to adult numbers of 375,400 in 2016-2018 Cancer Statistics for the UK

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